AND HERE'S WHAT THE DOCTOR SAID...
- •He confirmed I have Secondary Progressive Multiple Sclerosis.I already kind of knew this. The specialist just confirmed the diagnosis.
- •He is doing test just to make sure it is not an MS variation.He doesn't feel that it is, but he is covering all bases.
- •There aren't any medications specifically for SPMS.However, there are still options that can help slow down the progression.
- •He recommended a medication called Aubagio.It is a low dose chemotherapy pill I will take daily. It I'll suppress my immune system. And there are the usual side effects that accompany chemo. But it is worth the risk of it can slow down the progression.
- •My doctor was groovy!He gave me hope! He said that there are always options. Each option will hold greater risk, but he is willing to fight with me. He gave me hope. He said he will even go back to older therapies that aren't used much anymore if needed. He said he won't give up until he finds a way to help manage my disease.
- •So, while the road ahead may be a little rough, I feel more hope than I have in so long.I'm nervous about the new medication, but I am glad that I have the option of taking it. My life is going to change a bit, but my life has been changing since I was diagnosed 11 years ago. I'm not sure how, but I want to find a way to turn this into a positive.
- •Thank you so much for all of the support yesterday!I cannot tell you how much it touched my heart. I felt odd reaching out the way that I did, but I had to get my feelings out somehow. I didn't want to burden my family with them. It's difficult for me to tell people how I feel. It was such an amazing feeling to be able to just release my pent up emotions. I had tears running down my face as I read everyone's responses. I appreciate the ListApp community so very much!
- •I know I'm going to be okay.When I was first diagnosed in 2005, I decided to look at MS as just another piece of who I am. Some people have blue eyes, some brown. Some people are short and some are tall. Some people have high blood pressure. I just happen to have Multiple Sclerosis. It isn't who I am. I promised myself I would use this and find a way to do something positive with it. Yesterday, I was scared. Today, I am renewed. I remember who I am, thanks in a big part to all the encouragement I received from all of you!